About

Hello and welcome to my blog.

My name is Kieron, I’m 45 years young and in February 2018, our son Alfie was diagnosed with Duchenne Muscular Dystrophy, a progressive muscle wasting disease that has no cure. As you can imagine our world was shattered.

Through this blog, my aim is to use this blog as a tool to ‘let everything out’. My coping mechanism. I will share my experiences both individually and as a family through the good times and the bad, in order to raise awareness of Duchenne Muscular Dystrophy.

Thank you for taking the time to read my posts.
Kieron #DuchDad

4 thoughts on “About

  1. Dear Duchdad, I discovered this page through the ‘celeb’ birthday wishes on Twitter. I am so sad for your fate, a friend of mine here in Norway has a son DMD. The prognosis was he won’t make it to his 10th birthday. He is a young adult today.

    Many are asking where to donate. It doesn’t look like that’s your goal, but if you choose a relevant and good charity, and ask Tobias Menzies or his fans to retweet with the link, I am sure you will see amazing things happen!
    Regards a Tobias Menzies fan 🤗

    Like

    1. Hi Keren,

      Many thanks for your message.

      We are very positive that Alfie will live a full and prosperous life like friends son.

      We personally tend to focus on raising awareness rather than fundraising. We have crowdfunded for Alfie’s requirements in the past.

      We have also supported and been supported by UK Duchenne charities such as Duchenne UK, Action Duchenne and Muscular Dystrophy UK.

      We have also worked closely with another UK charity, Together for Short Lives.

      Thank you also for following my blog, again this is to raise awareness from a father’s perspective.

      Best regards,
      Kieron
      (Alfie’s Dad) 💙

      Like

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