This week I’ll be hosting a voluntary online zoom chat for the charity, Together for Short Lives. They have very kindly supported my vision of a men’s support group for Dad’s, Grandad’s and male carers who care for a child with complex needs. I came up with the idea of ‘Brews Brothers’ during lockdown as […]

Duchenne and the Brain Hello, I hope that you have found my last couple of awareness blogs informative and thank you to everyone that has read and the posts. Thank you also to everyone who has updated their profile pictures on social media to the red balloon. As you may now know today, Monday September […]

World Duchenne Awareness Day is celebrated every year on 7th September. Worldwide awareness will be raised for Duchenne and Becker Muscular Dystrophy (a milder form of muscular dystrophy). The date, (7/9) refers to the 79 exons of the Duchenne gene. In this blog I’ll explain a little bit about DMD and our experiences so far as a family. I’ll just […]

In 2013, World Duchenne Organisation began imagining a day that was dedicated to raising awareness about Duchenne Muscular Dystrophy (DMD). A day on which a symbolic gesture would be made worldwide and a message would be transported everywhere. They looked into each other’s eyes, put pen to paper and started work on their plan. 7 […]